Welcome to the New Zealand Pompe Network
This site has been set up by people who have Pompe Disease, specifically for people with Pompe Disease, their families, friends and supporters.
We want to offer support, information, friendship and hope to those affected by Pompe.
(created 7th November 2010) (Updated 25 May 2012)
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There are 5 people diagnosed with Pompe Disease in NZ that we know of.
Let us introduce ourselves...
The very first photo of all 4 of the founding members of NZPN Inc.
Wellington - 8th of June 2011
Wellington - 8th of June 2011
