The following are links which provide excellent information about Pompe Disease
For something really cool, check out this video on Youtube! This is what is known as a "Flash Mob"
Genzyme has a shared commitment with the worldwide rare disease community: to raise the awareness of rare diseases.
On May 15th 2011 the Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting, a so called flash mob.
Top choreographer Gerald van Windt, 45 professional dancers, 'The Voice of Holland' stars Shary-An and Wiep, and 'So You Think You Can Dance' finalist Natascha gave a spectacular performance to support the rare disease day theme: 'Rare but not alone'
Clinical Trial Information ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials which are conducted in the United States and around the world. This website is a MUST to visit, because there are Kiwis who have taken part in these trials. If you can't get help in NZ, try this website!