Welcome to the New Zealand Pompe Network

This site has been set up by people who have Pompe Disease, specifically for people with Pompe Disease, their families, friends and supporters.

We offer support, information, friendship and hope to those affected by Pompe.

There are 12 people diagnosed with Pompe Disease in NZ that we know of.

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NZPN is incorporated under the Charitable Trusts Act 1957
and is a registered charity - Registration Number CC54486
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Site created: 7th November 2010
Site updated: 14 August 2019