New Zealand Pompe Network
  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • News and views
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • NZPN Conference 2018 Summary
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us

Welcome!

Welcome to the New Zealand Pompe Network

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This site has been set up by people who have Pompe Disease, specifically for people with Pompe Disease, their families, friends and supporters.

We offer support, information, friendship and hope to those affected by Pompe.


There are 12 people diagnosed with Pompe Disease in NZ that we know of.

NZPN is incorporated under the Charitable Trusts Act 1957
and is a registered charity
- Registration Number CC54486
​

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Site created: 7th November 2010
Site updated:
6th November 2019
Thank you for visiting us @ NZPN
  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • News and views
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • NZPN Conference 2018 Summary
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us