New Zealand Pompe Network
Home
Our People
Our Patients
>
Freda
Allyson
Christine
Dean
Samantha
Yakuta
Laurie
News and views
Press Releases
Personal Media Stories
Blog
Allyson's Florida Blog
Success Stories
>
Maryze
Brad
Monique
Ben
Brian
About Pompe
What is Pompe Disease?
Symptoms
Diagnosis
Treatments
Recommended Links
Clinical Trials
Air Travel
Donations & Fund Raising
Glossary
Accessible NZ
NZPN Membership
NZPN Conference 2018 Summary
PHARMAC & Govt
Party stances on funding Rare Diseases
Contact us
Welcome to the New Zealand Pompe Network
This site has been set up by people who
have
Pompe Disease,
specifically
for
people with Pompe Disease, their families, friends and supporters.
We offer support, information, friendship and hope to those affected by Pompe.
There are
12
people diagnosed with Pompe Disease in NZ that we know of.
NZPN is incorporated under the Charitable Trusts Act 1957
and is a
registered charity
- Registration Number CC54486
Site created:
7th November 2010
Site updated:
6th November 2019
Home
Our People
Our Patients
>
Freda
Allyson
Christine
Dean
Samantha
Yakuta
Laurie
News and views
Press Releases
Personal Media Stories
Blog
Allyson's Florida Blog
Success Stories
>
Maryze
Brad
Monique
Ben
Brian
About Pompe
What is Pompe Disease?
Symptoms
Diagnosis
Treatments
Recommended Links
Clinical Trials
Air Travel
Donations & Fund Raising
Glossary
Accessible NZ
NZPN Membership
NZPN Conference 2018 Summary
PHARMAC & Govt
Party stances on funding Rare Diseases
Contact us