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Helpful Links

New Zealand
​

NZ Organisation for Rare Disorders

Muscular Dystrophy Association of NZ

Lysosomal Diseases NZ​
International


​Australian Pompe Association

International Pompe Association

Acid Maltase Deficiency Association

Canadian Association of Pompe
​

​Mutations in Human Acid Alpha-Glucosidase
For the Ultra Geeks among us!

Thank you for visiting us @ NZPN
  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • News and views
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • NZPN Conference 2018 Summary
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us